Isaiah is a sweet and delightful seven year old boy with a special way of communicating. Isaiah is a medically fragile child who requires total care. His complex medical conditions include Cornelia de Lange syndrome, trachea and oxygen dependence, g-tube dependent, cortical vision loss, seizure disorder, global developmental delay and small stature. Despite his numerous medical conditions Isaiah continues to be resilient and thrive. Isaiah is nonverbal but has a special way of showing you he is engaged. He moves his body back and forth in his chair and makes noises throughout the day. Isaiah enjoys smiling and laughing when the mood is right or when he is around his favorite nurse. Isaiah enjoys being held and cuddled. Isaiah enjoys attending school and going on field trips in his community.
Photo by: Pruitt Allen